Heston is a sweet boy who has a rare disease called Mucopolysaccharidosis type III A (MPS III A) or Sanfilippo Syndrome. This page chronicles the journey of some of his day to day happenings of him and his 4 other brothers.
MPS IIIA is a terminal disease that mainly effects the brain and central nervous system. Life expectancy is approximately 13 years.
Thank you to Mercedes-Benz Sprinter Canada (Mirabela Muresan, Miki Velemirovich and Pablo de la Pena), Mercedes-Benz Canada and Three Point Motors who not only helped with providing the substantial discount for the van, but also worked really hard to rush the van to us as a surprise for Christmas.
A special thank you to Three Point Motors, led by Peter Trzewik (CEO, GAIN Dealer Group) and Cindy Mui (Marketing Director GAIN Dealer Group) who had the compassion and desire to help our family, and made it all possible. We are thrilled and honoured that you have welcomed us into your family, and we could not be more impressed with how you have made the whole experience so special for us. We look forward to many years with our van, with you by our side.